About Lisa

Lisa Kilion started to help inspire, educate and motivate families who are dealing with Lyme Disease and PANDAS/PANS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections,) diseases that are widely misunderstood and misdiagnosed with very little information available. Lisa wants to let parents of children suffering from Lyme and PANDAS know that they are not alone. Others are going through the same challenges and treatments do exist. Families, medical professionals, and educators have trouble fully understanding the impact that these diseases have on the lives of children and the difficulties their families endure. With support, we can get through these difficult times.

Through PANSLife, Lisa wants to shine a light for all those who have trouble understanding the detrimental effects of these medical diseases. She wants to share her knowledge in dealing with doctors, educators and family relations to help others as they deal with the everyday challenges that present when one has a child stricken. 

Lisa is a wife and a mother of two wonderful kids. She holds a BA degree in Psychology, an MBA in finance and an M.S. in Education. Lisa has been an educator for the past 20 years in New York State. She is a moderator of several PANDAS support groups on Facebook. In addition to the work she has done on PANSLife, Lisa has started a PANDAS support group that meets in New York, helping families from the tri-state area. She has been involved in PANDAS/PANS awareness and conferences. Lisa actively researches and tries to find new methods of treating Lyme Disease and PANDAS. She is one of the founders of the Lyme Disease Challenge and more recently, the NY PANS/PANDAS Parent Advocacy Team (NY-PAT) which seeks to bring greater awareness of PANS and additional support to families in the state of NY.  Lisa would like to thank all the wonderful, supportive readers of PANSLife who have given so much to her.

When not teaching or advocating, Lisa can be found with friends or family, or reading, writing, singing, playing guitar, practicing yoga or bicycling.

Lisa would also like to thank her husband who supports and cares for her and their children in zillions of ways.