PANDAS/Lyme Terminology
A
Acute: severe, intense
ADD: Attention Deficit Disorder (without the hyperactivity; see ADHD)
ADHD: “Attention-deficit/hyperactivity disorder (ADHD) is a neurobiological disorder characterized by developmentally inappropriate impulsivity, inattention, and in some cases, hyperactivity.” - See more at: http://www.chadd.org/understanding-adhd.aspx#sthash.06vMekFn.dpuf
Amoxicillin: antibiotic –See more at: http://www.nlm.nih.gov/medlineplus/druginfo/meds/a685001.html and antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/
Anaplasma – a tick-borne disease – See more at: http://www.lymediseaseassociation.org/index.php/about-lyme/other-tick-borne-diseases/ehrlichiosis
Antibiotics: “Antibiotics are powerful medicines that fight bacterial infections. Used properly, antibiotics can save lives. They either kill bacteria or keep them from reproducing.” http://www.nlm.nih.gov/medlineplus/antibiotics.html; antibiotics are often used to treat PANDAS/PANS and Lyme Disease
Antibodies: “An immunoglobulin, a specialized immune protein, produced because of the introduction of an antigen into the body, and which possesses the remarkable ability to combine with the very antigen that triggered its production.
The production of antibodies is a major function of the immune system and is carried out by a type of white blood cell called a B cell (B lymphocyte).” http://www.medterms.com/script/main/art.asp?articlekey=19101
APD - Auditory Processing Disorder; can be one of many symptoms of Lyme Disease
Arthritis-can be a symptom of Lyme Disease
ASO: Antistreptolysin O Titer. Measured after a blood test and used to detect recent strep infections. Anti-dNase B test is often ordered at the same time.
Augmentin: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/
Autoimmune -The body's immune system attacks its own cells
Azithromycin: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/
B
Babesia - malarial-like infection spread by ticks
Bacteria
Banderol - Nutramedix herbal drops used for treating Lyme
Bands
Bartonella
Biofilm
Blood brain barrier
Blood tests
Borrelia - Lyme
C
CamKinase
CBT - Cognitive Behavior Therapy
CDC - Center for Disease Control
Chronic - lasting
Co-infections - other tickborne infections (often refers to Babesia, Bartonella, Erlichia, Anaplasmosis, etc.)
Compulsions
Congenital -transmitted to baby from mother via placenta
Cunningham Panel
Cyst
D
DD - Dear Daughter (an abbreviation used in support groups)
DH - Dear Husband (an abbreviation used in support groups)
DS - Dear Son (an abbreviation used in support groups)
DW - Dear Wife (an abbreviation used in support groups)
Doxycycline -antibiotic; sometimes abbreviated as Doxy
E
EBV - Epstein Barr Virus; also research mononucleosis; cause of great fatigue
ELISA - a test for Lyme that was originally created to help determine statistics; is only about 50% effective
Emotional Lability
Ehrlichia -tickborne infection
erythema migrans (EM): bull’s eye rash that sometimes results from a tick bite
F
G
GABHS
genetic testing
H
Homeopathy
I
IDSA -Infectious Diseases Society of America; much of this group does not yet acknowledge chronic Lyme
Igenex - gold standard in Lyme testing; picks up antibodies so is fallible if the body is immune suppressed and unable to fight bacteria
IgG - shows past infection
IgM - shows current infection
ILADS - International Lyme and Associated Diseases Society
Immune system
Immunologist
IVIG: Intravenous Immunoglobin; can be used to treat immune deficiencies, PANDAS/PANS and Lyme.
J
Jekyll and Hyde: a symptom we see in some people suffering from PANS and Lyme/Bartonella. Looks a little like bipolar. Happy one moment, silly, then tantrum, angry. Also refers to the personality changes we see in our kids.
Joint inflammation - not atypical with Lyme Disease
K
L
LLMD: Lyme Literate doctor; a doctor who goes by ILADS guildelines; a doctor who recognizes that Lyme can be chronic and is not cured with 3 weeks of antibiotics.
Lyme - borrelia; a bacteria spread by ticks (or congenitally.) Can lie dormant or can result in 100s of sympotms.
M
Metal toxicity
MGH: Massachestts General Hospital; they have an outpatient PANDAS department.
Minocycline
Moleculera Labs
MTHFR - methylenetetrahydrofolate reductase
Mycoplasma
N
Neurologist
Neuropsychiatric
Neuropsychologist
Night terrors
NIMH: National Institute of Mental Health
O
Obsessions
OCD - Obsessive Compuslive Disorder
ODD - O Deviant Disorder
Onset
Optometrist
P
PANDAS: Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus
PANS: Pediatric Acute-Onset Neuropsychiatric Disorder; autoimmune encephalitis that can be caused a multiple of triggers including but not limited to: flu, pneumonia, coxsackie, Lyme, strep, vaccines
Parasites
Pediatrician: Doctor specializing in working with babies, children, teens
Penicillan: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/
Plaquenil - antibiotic
Plasmapheresis
Prednisone - steroid
Probiotics - healthy bacteria for the gut (intestines)
Psychiatrist: MD with psychology training; can prescribe medication.
Psychologist: PhD or PsyD. Specializes in counseling and/or play therapy; does not prescribe information but will consult with a psychiatrist if needed.
PTSD: Post-Traumatic Stress Disorder. Many PANDAS parents suffer from this.
Q
R
Rage - can be a symptom of Bartonella as well as PANS
Round body
S
Samento - Nutramedix herbal drops used for treating Lyme
Seronegative
SIB: Self-Injurious Behavior
Sleep-walking
Spirochete
Steroids
Streptococcus
Swedo, Dr. Susan
Sydenham Chorea
Symptoms
T
Tic: an involuntary vocal or motor
Tick - small insect capable of carrying many diseases. Spread from birds and rodents.
Tindamax - antibiotic
Titers
Tourette's
U
Urinary issues - can be a symptom of PANS
V
Virus
W
Western blot
X
Y
Yeast
Z